Japan spinal cord

Activites

ActivitesActivites


Promotion of medical research concerning spinal cord injuries.
Establishment and operation of a comprehensive spinal cord information centre.

Activities Index
You can browse Activities from 1996- current using the index below.

 |  2014 |  2013 |  2012 |  2011 |  2010 |  2009 |  2008
 |  2007 |  2006 |  2005-2004 |  2003 |  2002 |  2001 |  2000 |  1999 |  1996

Activities in 2014


  1. Symposium : The10'th anniversary of TRI (Translational Research Informatics Center) "Current situation and future prospect for the development of innovative therapies for SCI", Conference Hall JA Bld. Tokyo. Inform the expectation of the persons with spinal cord injury thought and Cure development hope.

Activities in 2013


  1. Publication :"Well-being of the person with SCI(Japanese)" (Morimura Houmei-kai Foundation)  March. Published 7,500 copies distributed free of charge.
  2. Participates in : "Working 2 Walk 2013" 27'th - 28'th November, Boston Convention Center. hosted by Unite 2 Fight Paralysis(u2fp)
  3. Seminar : "2013 JSCF Seminar for Spinal Cord Regeneration Studies",26'th October, Shinjyuku NS Bld. Sky-hall B 30F, Shinjyuku, Japan. Speaker : Minoru Ueda, Nagoya University. Masao Koda, Chiba University.

Activities in 2012


  1. Forum : "Walk Again 2012" 6'th October, Place : Tokyo Int. Exchange Center. Theme : Regenerative Medicine and Brin Science. Speaker : Hideyuki Okano, Keio University, Mitsuo Kawata, ATR. Kinichi Nakashima, JAist. Nobuko Uchida, Stemcells Inc.VP.
  2. Participates in : "Work 2 Walk 2012" 1'th - 3'th November. Hilton Orange County Airport CA. hosted by Unite 2 Fight Paralysis(u2fp)

Activities in 2011


  1. Publication:“Spinal cord injury- 1 year of beginning” (Japanese) Feb. 2011.
    Produced 6,000 number of copies, and it distributed for free.
  2. Disaster volunteer activity : In the stricken area of an East Japan great earthquake
    Under the March, 2011 start and the March, 2012 present continuous
  3. participates in:ISCos 50th annual meeting & ICCP meeting June 2011 Washington DC
  4. participates in:Working 2 Walk hosted by Unite 2 Fight Paralysis(u2fp)

Activities in 2010


  1. Publication:“The management guide of chronic SCI” (Japanese) Feb. 2010.
    Produced 15,000 number of copies, and it distributed for free.
  2. Regenerative medicine symposium : Walk Again 2010 in Fukuoka July 2010
    Speakers: Hideyuki Okano, Keio University/stem cell biology
    Syoen kume, Institute of Molecular Embryology and Genetics
    Kumamoto University
    Seiji Okada, Advanced medicine section Kyushyu University/stem cell biology
    Moderator Shigeko Segawa, Asahi Shinbun/science editor

Activities in 2009


  1. RIKEN Kobe symposium” Stem cell and society & Asian network” Feb. 2009,Kobe JSCF reports "stem cell tourism."
  2. Keio University High technology symposium Feb. 2009,Tokyo
    JSCF reports“Patient expects an iPS cell”
  3. National Rehab Center for Persons with Disabilities symposium
    ”Disability & Education” Feb. 2009, Saitama
    JSCF reports“SCI student's entering school, returning to school, and employment
  4. 10th anniversary international symposium of JSCF“Regenerative medicine of CNS”
    Oct. 2009, Akihabara, Tokyo
    Speakers: Shiya Yamanaka, CiRA(Center for iPS cell Research & Application )
    Kyoto University
    Hans Kerstead, Reeve-Arvine Research Center UC Irvine
    Allison Ebert, Stem Cell & Regenerative Medicine Center
    University of Wisconsin-Madison
    Yasuto Itotyama, Dep. of Neurology Tohoku University
    Hideyuki Okano, Keio University/stem cell biology
    Moderator Seiji Hasegawa, Yomiuri Shinbun/science editor
    *this symposium was broadcasted in TV Asahi on October 25. “Human body
    reproduction ―A challenge of Dr. Yamanaka, iPS cell ”

Activities in 2008


  1. Publication:”Public participation manual for person of SCI” (Japanese)
    Feb. 2008 Produced 18,000 number of copies, and it distributed for free.
  2. Symposium: “Promotion of regenerative medicine by patients” Feb. 2008, Tokyo
    Speakers: Robert Goldstein, JRDF( Juvenile Diabetes Research Foundation International)
    Tatuo Inoue, Japan IDDM Network
    Hideyuki Okano, Keio University/stem cell biology
    Moderator Wako Tojima, Science journalist
  3. Publication:“I also be a mom!―SCI woman's childbirth and child-rearing” (Japanese)
    Produced 6,000 number of copies, and it distributed for free.
  4. Symposium: Walk Again 2008” Talk to the patient: iPS cell(induced pluripotent stem cell) ”
    Speakers: Kazutoshi Takahasi, Kyoto University Yamanaka Lab. /Stem Cell Biology
    Hiromitu Nakauti, Institute of Medical Science University of Tokyo/Stem Cell Biology and Regenerative Medicine
    Masayo Takahashi, RIKEN Kobe/ Stem Cell Biology & ophthalmology
    Yoshiki Sawa, Osaka University/ cardiovascular surgery
    Hideyuki Okano, Keio University/stem cell biology
    Moderator Mariko Tajkahasi, Asahi Shinbun/science editor
    Cooperate by JST(Japan Science and Technology Agency)

Activities in 2007


  1. Production:“ Step by Step” rehabilitation DVD at home
    Produced 6000 number of copies, and it distributed for free.
  2. The meeting of Olfactory Mucosa Autografts for chronic SCI patients by Neurosurgery dpt. ,Osaka University In December 2007, A doctor arrive from Portugal, and he will start to transplant surgery for applicant.
  3. Forum “The possibility of BMSC(bone marrow stromal cells)” Speaker: Mari Dezawa ( Kyoto University), et al.
  4. Forum “Walk Again 2007” :October.8 Place : Tokyo International Exchange Center, Tokyo, Japan. Theme : "International symposium on Neurotization Speakers: Coordinated by Hideyuki OKANO, Keio University Masaya NAKAMURA ,Keio University Masao KOHDA, Chiba University Keita MORI, SanBaio Inc., co-COE Nobuko UCHIDA, Vice-President of StemCell Inc. Hans KEIRSTEAD, University of California, Irvine Published “Experimental treatments for spinal cord injury”(ICCP) Japanese version.
  5. Meeting with directors of Korea Spinal Cord Association which organized in 2006: Oct.15, Tokyo Spinal Cord Association proposed us to form a federation with SCI parties internationally. We try to build up closer cooperation in Asia.
  6. It become clear that Clinical trial of Medication GM-CSF(Granulocyte Macrophage Colony Stimulating Factor)for chronic SCI patients by a Japanese venture business from beginning of 2008 : Oct.24

Activities in 2006


  1. Symposium “The present of ES cell research”: May 20 ,2006 Place: Maison Franco-Japonaise (Nitchfutsu Kaikan), Ebisu, Tokyo Contents: Speakers: N. NAKATSUJI, Kyoto University Y. MATSUBARA, Ritsumeikan University
    ■ The possibility of cure by ES cell research.
    ■ Trial under strict examination by Ministry & Universities.
    ■ Sucess of Human ES cell strain distribution
    ■ Cell research in the world
    ■ Historyofhumanexperimentation(NaziRegime)
    ■ Explanation of the Nuremberg code includes such principles as informed consent and absence of coercion; properly formulated scientific experimentation; beneficence towards experiment participants.
    ■ ReceptivityofthegeneralpublicforregardingclinicaltrialsforEScells.


  2. ICCP general meeting 2006 in Atlanta: October 15th, 2006 Two former directors of the JSCF joined.
    ■ Development of new assessment basis for incomplete SCI.
    ■ Renewal of common guideline in cooperation with external specialist for a rehabilitation program after surgery.
  3. The 5th Asia-Pacific Symposium on Neural Regeneration, Shanghai: December 8 -10: Tongji University, Shanghai, China. Two former directors of the Japan Spinal Cord Foundation joined. Contents:
    ■ Brain damage: stroke and arauma
    ■ Spinal cord injury & disease (Chair; John Steeves,& Prof J.Z. Zhao)
    ■ Optic Nerve Protection & Regeneration
    ■ Peripheral Nerve Regeneration
    ■ Stem cells, gene therapy, & other promising studies (Chair; Prof. Wise Young & Prof. Huawei Li)

Activities in 2004-2005


  1. The fourth spinal cord reproduction citizen seminar : Oct.16,2004, Shibuya Ward, Tokyo JSCF held a seminar, and 120 people participated. Because enforcement of clinical trial of "a treatment of the spinal cord injury by transplant of a bone marrow derived cell" by Kyoto University and a study team of Kansai medical college became imminent, this was held so that the person concerned talked with a researcher.
    ■Dr. Yoshihisa SUZUKI, Kyoto University, introduced a protocol (a clinical trial enforcement plan) of this clinical trial.
    ■Dr. Masanori FUKUSHIMA, Kyoto University, an expert of clinical trial design, stated when clinical trial carry out, everyday medical examination and treatment should have been state of the art, and a close protocol was necessary to carry out clinical trial.
    ■Dr. Chizuka IDE, Kyoto University, wanted to make the thing which seemed to be the center where clinical, there was a series to a treatment, care, rehabilitation not to mention a study.
  2. ICCP general meeting :Oct.23, San Diego, USA One staff participated from JSCF. talked about each organizations’ activities of past 1 year and future problems.
  3. 4th Asia Pacific Symposium on Neural Regeneration : Toyonaka city ,Osaka Domestic and foreign researchers participated more than 100 people, and some researchers gave a lecture. After the symposium, Dr. Hongyun Huang, capital medical college, Beijing, and Makoto OHAMA (The chief director of JSCF) talked together, and OHAMA demanded an exhibition of study information from Dr. Huang about OEG transplant. NHK, Japan Broadcasting Corporation, national -managed television net-work, collected data on this state. NHK broadcasted a special feature program "a shock of the abortion fetal use" April 9, 2005, based on these coverage and introduced that there was yes and no two opposing arguments about the use of the fetal cell which attracted attention in a field of advanced medical care.
  4. Yomiuri medical care forum: Sep.5. 2004, Fuchu city, Tokyo 350 people participated in the person concerned or a family. Dr. Keiichi SHIBAZAKI, director Murayama medical care center fielder, explained an outbreak factor and rehabilitation of the spinal cord injury, a serial flow to a comeback to normal life. The Yomiuri Shimbun sponsored this forum, and JSCF supported it. Dr. Masaya NAKAMURA, Keio University, An orthopedist of the medical department, talked about his study, the result of having carried out human neural stem cell transplant to a rat and a monkey of the spinal cord injury, there was effective in a meaningful level in exercise ability. See: Iwanami A, et al. J Neurosci Res.2005 Apr 15;80(2):182-90. He told an effect of a treatment and information disclosure about safety were insufficient as for the treatment that China used OEG which went for. OHAMA,The chief director of JSCF, stated that because of a risk of the OEG in China, Japanese patients should have waited for a treatment till we could confirm safety.

Activities in 2003


  1. Sponsored 3rd Spinal Cord Regeneration Study Promotion Seminar: May, 2003
    Lecturer: Prof. Hideyuki Okano, Keio University, Japan
  2. Encouraged Japanese Minister of Health, Labor and Welfare personally to promote regeneration medicine: July, 2003
    Requested Japanese government’s experts committee to lift ban on studies on human neural stem cells at hearing on “Guideline for Clinical Studies Using Human Stem Cells” (expected to be approved in 2004): Dec. 2003
  3. Discussed issues of scientific evidence and human subject protection regarding clinical study approved by Institutional Review Board (IRB) at Kansai Medical University, in which bone marrow stromal cells are transplanted into cerebrospinal fluid of subjects in the acute stage of spinal cord injury, with co-researchers Prof. Chizuka IDE, Kyoto University and Assistant Prof. Yoshi hisa SUZUKI, Kyoto University. Study will be conducted following resubmission of application to IRB after Sept. 2004.: Jan.2004
  4. At a symposium, requested bioethics experts committee of Council for Science and Technology Policy in Japanese Cabinet Office to permit use, for therapeutic purposes, of human embryos in research. Again requested committee to lift ban at hearing held in April 2004; finally approved through a vote at committee meeting held in June.: Feb. 2004
  5. Activities to Improve Quality of Life (QOL) of People with Spinal Cord Injury
    ■ Sponsored lecture in Tokyo by Dr. John R. Bach, University of Medicine and Dentistry of New Jersey, U.S.A., on “Noninvasive Me chanical
    Ventilation”: Nov, 2003
    ■ Conducted statistical survey of 6000 people on abnormal pain after spinal cord injury. 1650 replies collected; results to be released in Aug. 2004.: Feb, 2004

Activities in 2002


  1. Workshops in Tokyo and Osaka on rehabilitation at home, with physical therapists invited from the University of Washington in Seattle, USA : April
  2. Participation in the Annual Scientific Meeting of International Medical Society of Paraplegia held in Vancouver, Directors of JSCF joined.
    Research into the public care system in British Columbia, Canada : May
  3. Invited by Mr. Stewart Yesner, the lawyer, who founded the Spinal Research Trust in the UK and the Australasian Spinal Research
    Trust in Australia.
  4. Lecture meeting by Dr. Wise Young, Rutgers University, USA, in Tokyo: November

Activities in 2001


  1. Publication and distribution of the Research Report on the Care Situation for Persons with High-cervical Injuries at Home, and Research Report on the Admission Status of Spinal Cord Injured Persons at Hospitals Across Japan. 10,000 copies , provided for free: April, 2001
  2. Lecture by Mr. Walt Lawrence, a breathing machine user from Canada, at forums in Kyoto and Tokyo: Towards the Self-support of Breathing Machine Users: June, 2001
  3. Forum “Sexuality of the Disabled” ,Tokyo and Fukuoka. Professor Stanley Ducharme, the School of Medicine, Boston University, was Invited as a speaker.: Funded by the Pfizer Health Research Foundation with US$ 15,000 : July,2001

Activities in 2000


  1. Launch of the service providing medical science papers,Journal of the Japan Medical Society of Paraplegia: April, 2000
  2. Fact-finding research into the care situation for persons with high-cervical injuries at home. Funded by the Welfare and Medial Service, an auxiliary body of MOHW, with US$ 30,000 : July,2000
  3. Research into the admission status of the spinal cord injured persons at hospitals across Japan. Funded by the Japan Philanthropic Association, with US$ 15,000 ): August,2000
  4. Launch of the telephone help line SCI Hotline "Sekison #110". Funded by The Nippon Foundation, with US$ 8,000 : September, 2000
  5. Launch event "Stand Up 21", the Tokyo Metropolitan Government and Edogawa Ward, supported by the Ministry of Health and Welfare MOHW.
    Medical Science Lecture No. 2 "Nerve Reconstruction of Spinal Cords: October
  6. Aiming at the Liberation from Wheel chairs by Professor Saburoh KAWAGUCHI, Kyoto University: October
  7. NPO status recognized by the Tokyo Metropolitan Government: October

Activities in 1999


  1. Lecture by Mr. Michael WINTER ,Associate Administrator for Budget and Policy at the US Federal Transit, Tokyo: February
  2. Inaugural general meeting of JSCF Medical Science Lecture No. 1 "Sexuality of Spinal Cord Injured Persons": June
  3. Participation in the Annual Scientific Meeting of the International Medical Society of Paraplegia held in Denmark : June
  4. Visit to the USA by two JSCF executives for cooperation with the Christopher Reeve Paralysis Foundation and the Paralyzed Veterans of America (PVA) :June

Activities in 1996


  1. The start of a group to discuss promotion of the research into regeneration of damaged spinal cords and improvement of the quality of life (QOL) of spinal cord- injured persons: July,1999
  2. First preliminary meeting for the establishment of the Japan Spinal Cord Foundation (JSCF); October 19, 1996